chronic care

Defining the Digital Patient Experience in Healthcare

We reviewed factors influencing digital patient experiences (digital PEx) in healthcare and proposed design considerations for improving them. The findings from 45 review studies highlight the critical role of technology usability, patient-centered design, and organizational integration. By synthesizing these insights, we developed a framework to guide the design and evaluation of digital health tools, ensuring better alignment with patient needs...

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Understanding the Use of Patient-Reported Outcomes Systems for Cancer Care

We explored the challenges and opportunities healthcare professionals face when integrating electronic patient-reported outcomes (ePROs) into cancer care. Using a systematic mapping study, we identified key themes, including clinical workflow, organizational support, usability, and data visualization. Our findings emphasize the importance of seamless integration into electronic health records (EHRs), user-friendly features, and effective communication between patients and clinicians.

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A Deep Dive into Breast Cancer Mobile Applications: Features, Gaps, and Opportunities

Mobile apps for breast cancer have grown in number, offering resources for patients and healthcare providers. This analysis of 599 apps from leading app stores revealed a focus on disease and treatment information, disease management, and awareness-raising. Most apps were patient-oriented, with limited healthcare professional involvement and a lack of source material or disclaimers. Almost 80% of the apps didn't...

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More Stamina: Gamified mHealth for Managing Fatigue in Multiple Sclerosis

This study outlines the design, prototyping, and usability evaluation of "More Stamina," a gamified mHealth app aimed at helping individuals with Multiple Sclerosis (MS) manage fatigue. Developed through a user-centered design approach, the app incorporates behavioral change models and gamification techniques to encourage self-management. Usability testing revealed insights for refining app features, emphasizing simplicity, customization, and a positive user experience....

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Protocol for Exploring Feasibility of More Stamina: An mHealth App for Fatigue Management in MS

This is a study protocol designed for the evaluation of "More Stamina," a mHealth app designed to help individuals with Multiple Sclerosis (MS) manage fatigue. The approach intends to use a mixed-methods, multicenter study to assess the app's feasibility, acceptability, and usability among MS patients in Argentina, Spain, and Switzerland. The study incorporates both qualitative and quantitative methods to explore...

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Workshops on Designing Gamified Solutions for Health

A series of workshop focusing on creating gamified designs to improve engagement among young patients with chronic conditions, particularly Multiple Sclerosis (MS). Participants explored various gamification frameworks and methodologies, brainstorming solutions to enhance adherence to physical activity. The sessions combined theoretical insights and hands-on exercises, producing actionable designs with potential applications for broader health challenges. (more…)

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Designing mHealth Apps for Physical Activity: Insights from People with Multiple Sclerosis

This study investigates the needs, obstacles, and motivators for individuals with Multiple Sclerosis (MS) and their healthcare providers in using mHealth apps for physical activity. Using a mixed-methods approach that combined focus groups, interviews, and surveys, we explored barriers and facilitators for physical activity and desired app features. The findings highlighted the importance of fatigue management, user-centered design, and gamification...

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COVID-19 Changing Online Conversations About Multiple Sclerosis on Twitter

This study examines how the COVID-19 pandemic influenced Twitter discussions about Multiple Sclerosis (MS). Using sentiment and topic analysis, we analyzed tweets before and after the World Health Organization declared COVID-19 a pandemic. The results reveal shifts in conversation focus and emotional tone, providing insights into how global health crises impact online discourse for vulnerable populations. (more…)

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Using Early Health Technology Assessment to guide mHealth development

This study focuses on using Early Health Technology Assessment (EHTA) to guide the development of More Stamina, a mHealth app designed to help people with Multiple Sclerosis (MS) manage fatigue. The assessment evaluated the app’s usability, safety, and integration potential within healthcare systems, offering a roadmap for further development and market readiness. (more…)

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